Porridge for Breakfast, The Ordinary Life of a TTP Survivor

I wonder if other TTP survivors are bothered by self doubt.  It comes and goes with me.  At present, I’m bothered. When we’re young and fit, we fully expect to be that way for the considerable future.  When lightning strikes, in my case TTP, it can take away that confidence.  In other ways, it gives something too.  For me, and others I think, it gives a desire to shout from the rooftops, ‘I have TTP!’ Thankfully I have amazing Haematologists.  They saved my life and I trust them completely.  However, I no longer trust myself.  My body simply won't always do what I want it to do.  I’ve been told there is nothing I can do alone, or not do, to prevent my Adamts13 level falling, I am totally dependent on monitoring and treatment.  As I grow older, I find that becomes more scary. It’s one of the reasons that I try so hard to control other elements of my life.  I can control my diet, to a certain extent I can control my exerci...

It's ECG day today, plus blood tests.  These are not TTP related but cardiology.  It's another slow step forward,  however,  I don't feel I can complain,  I've had such amazing treatment from the NHS.  I await the next step.  Our local medical centre is struggling with a shortage of staff.  We live in such a beautiful area, it's a mystery why it can't attract professional people.  Today, the nurse was completely amazing,  calm and kind.  Thank you 😊  I posted a card on my way home and happened to pass a great little shoe shop, Chapman's.  There were sale stickers and I stopped to look.  I figured there's no harm in the occasional treat.  So I treated myself 😁.   Rocket Dogs!  Who knew? 🤫 It must be about time for a garden update!  We've been so busy with family that the garden has been neglected,  however,  we're catching up slowly.   The weather last night w...

It's an age since I posted!   We've been busy, visiting family, helping out at birthday parties (I'm relieved that children do still play party games, pin the horn on the unicorn was very popular 😀), plus we've had other family members camping in our garden, with more to come. And the summer holidays are not over yet!    We've walked on Exmoor, the beach, and we've picnicked almost every day.  We've sat in the park, listened to gigs on the bandstand and walked and talked.   Exhausting,  but so much fun!  And laughed!  I'm feeling so much better than the first half of this year. Exmoor Heather and Gorse, it's just beautiful at this time of year.  We took the Exmoor Coaster and enjoyed the view.  These Ponies were a lovely surprise.  While the world appears to be losing its grip, ordinary people are doing their best to live.  I don't understand why some demand so much power,  want to trampl...