Skip to main content

Loving People

We’ve been away for a few weeks.   We’ve had some truly special moments and we wouldn’t have missed this time for all the world.  It’s been a pleasure.   Now we’re home again.  Catching up, resting, having time to reflect.  Spending time with your family can be a privilege, don’t ever knock it.


We visit London often and so only occasionally visit the money making tourist hotspots.  We took some time out for shopping, a little bit of culture, and much childminding.   I’ve walked 10,000’s of steps, drank  countless cups of tea and probably eaten too many croissants.   I’ve used my bus pass on a dozen different bus routes, travelled on the DLR and the underground.  I watched Go Jetters on CBeeBees, read Pepper Pig, played blocks and trains on the floor and had toddler cuddles every day.  It’s been amazing. 


I don’t quite know how I kept going, napping in the afternoon certainly helps, but like so much in life, you can often find the strength to do something when you need to.  You can surprise yourself.  It’s when you sit and relax that your bones ache, and oh geesh my bones ache now!   I have to admit, I appreciate being back home too.   I'm shattered!


I can't post a month's worth of special moments, but I'll include some snippets ❤️ 

Vincent Van Gogh.  A less tormented version on Starry Night.  The Immersive Experience was not quite what I expected,  but I'm pleased we had the chance to visit.  I had no idea that there were so many different versions of his work.

Horniman Gardens, free entry to the park and well worth a visit.   There are entrance fees for the Butterfly House and other exhibits but the Gardens are free.


Everyman Cinema,  a real Art Nouveau hidden gem.  I had no idea this existed.  It was so cosy and our coffees were bought to our seats!

Eltham Palace,  English Heritage.   An unusual house, beautiful gardens with a good playground and picnic area for children. 


We strolled along the South Bank one day and, of course, had to stop off for this exhibit 🤷‍♀️



At home the garden has moved on.  No Mow May turning into No Judge June.  I’ve made some mistakes in the garden.  I moved my spider plants, carefully tended indoors throughout the darker months, into the garden and they’ve been destroyed by the the cold winds.  Our fruit trees too have been decimated, the apple tree is showing no sign of life at all and the pears have withered on the branches.  It’s upsetting, but we’ll give each another chance.   The plum tree, in a more sheltered position seems to be ok.   Today is summery,  however the weather over the last month has been winter.   June was renamed Junuary.  


Thankfully,  I had someone water my plant pots 😀

Its blood test week, no emergency calls again, although results will come later.  While with family I didn’t have time to think about it.  





Comments

Popular posts from this blog

10th Dec 2024, Trees

There's something about trees that is ultra calming.  Just looking them, but walking through them is just amazing.   They are timeless.   When family come to stay we always walk in the woods.  It's something everyone should do, I recommend it for exercise and wellbeing. At this time of year, many people are thinking about trees.  Our Christmas Tree has been decorated since 2nd Dec, and it certainly helps brighten our home during this darkest month when the daylight is at its shortage.  Our tree is artificial, we've had it for years.  It's carefully packed away each January and reassembled at the beginning of December.  It's decorated with ornaments collected over the years, gifts from friends and family, near and afar, and souvenirs from our holidays  We love our tree 😊. Trees come in all sizes 😊 Another favourite tree in our garden is our Acer.  It's beautiful all through the year, especially autumn, ...

29th December 2024, New Year Approaches

  I've been thinking about my blog.  I began to journal as a way forward through the fog of PTDS and I think I've found my way.  I can find the daily mindfulness more easily than when I started.  I'm not really sure if anyone reads my words.  They probably don't mean anything to anyone else and I don't know if they are read or not.  Statistics tells me I've had page views from around the world,  but it could just be automated bots scanning the words.  More recently,  I've come to suspect it is.  That's OK, the blog is mine and it's done it job. I live my life calmly.  I try to be a good person.  I'm ordinary.  I'm also proud of coming this far.  From a quivering wreck of post treatment and TTP diagnosis,  I'm happy.  I've lost many people along the way, family, friends, colleagues,  neighbours, many younger than me, for reasons other than TTP.  I do wonder sometimes why I survived and they didn't....

31st Jan 2025, An Adamts13, Rare Disease, Blip

As a way to make me eat the words in my last post, my Adamts13 took a bounce.  Either over Christmas,  or New Year,  I picked up a nasty virus that left me with feeling shattered and with a cough.   I was due a routine blood test and it showed my Adamts13 had fallen from above 100 to 23.  I was called in for an emergency retest, and an appointment for Retuximab on standby.  Thankfully it had risen to 84, without intervention.  I'm proud of myself for staying as calm as I did,  even though I did shed a tear when I put the phone down.  A week later, my Adamts13 is back to above 100. I had read that many people have an occasional bounce, and as I had had the virus, that seems exactly what this was.  I'm grateful to the team for their prompt action, and their reassurance.   I did feel safe in the hands.  Goodness,  I'm getting an old hand at this.  Several years ago I would have been panicking.  Today we've...