Skip to main content

29th December 2024, New Year Approaches

 I've been thinking about my blog.  I began to journal as a way forward through the fog of PTDS and I think I've found my way.  I can find the daily mindfulness more easily than when I started. 

I'm not really sure if anyone reads my words.  They probably don't mean anything to anyone else and I don't know if they are read or not.  Statistics tells me I've had page views from around the world,  but it could just be automated bots scanning the words.  More recently,  I've come to suspect it is.  That's OK, the blog is mine and it's done it job.

I live my life calmly.  I try to be a good person.  I'm ordinary.  I'm also proud of coming this far.  From a quivering wreck of post treatment and TTP diagnosis,  I'm happy.  I've lost many people along the way, family, friends, colleagues,  neighbours, many younger than me, for reasons other than TTP.  I do wonder sometimes why I survived and they didn't.  I don't believe I'm here for any specific purpose or to save the world. However,  I have seen my grandchildren and I'm a survivor. 

So from now on I shan't post so often about the ordinary things of life.  If TTP does bare its awful head, I may document that, but not the porridge.  For now my Adamts13 is 124, getting towards the highest it's been.  I'm just getting on with life. I aim to enjoy my family,  to keep up the walking for fitness levels,  to work on my brain training word games for my grey cells and to make my garden prettier 😊.

I dont feel the need to be on a rare disease crusade any longer, I'm   passing the banner on to those following along.  

The world is a mess and I hope that common sense will prevail.  It can be a better world for everyone if everyone just does their bit.  However social media is full of clips with funny stories, sad stories, tips, experiences and people trying to sell you things. I'm not really sure why we all want to reach so far, but I guess each person has their own reasons.  For those that are in recovery, I applaud you.  You will get there,  it takes time, patience.  Love yourself. 

The TTP Support Network is a wonderful place to find information and understanding friends.  An article,  recently published,  has helped me to understand how far I have come.  It can be found in the useful info section of the TTP Support Network-psychology

The photo on this post was taken on a walk on the Somerset Steam Coast Path.  We walked on Christmas Day, after our dinner.  Quite by chance,  we witnessed a Murmuration of Starlings!  We heard them before seeing them, it was a magical moment as they all came into view 😀.  You never know what experiences are out there waiting for you,  😘.

I wish you all a peaceful,  joyous,  2025.  Be happy 😊 

❤️

Comments

Post a Comment

Hope you enjoyed my blog. I love to know what you think. All comments are moderated. Thanks for stopping by. 😊

Popular posts from this blog

10th Dec 2024, Trees

There's something about trees that is ultra calming.  Just looking them, but walking through them is just amazing.   They are timeless.   When family come to stay we always walk in the woods.  It's something everyone should do, I recommend it for exercise and wellbeing. At this time of year, many people are thinking about trees.  Our Christmas Tree has been decorated since 2nd Dec, and it certainly helps brighten our home during this darkest month when the daylight is at its shortage.  Our tree is artificial, we've had it for years.  It's carefully packed away each January and reassembled at the beginning of December.  It's decorated with ornaments collected over the years, gifts from friends and family, near and afar, and souvenirs from our holidays  We love our tree 😊. Trees come in all sizes 😊 Another favourite tree in our garden is our Acer.  It's beautiful all through the year, especially autumn, ...
Post a Comment
Read more

31st Jan 2025, An Adamts13, Rare Disease, Blip

As a way to make me eat the words in my last post, my Adamts13 took a bounce.  Either over Christmas,  or New Year,  I picked up a nasty virus that left me with feeling shattered and with a cough.   I was due a routine blood test and it showed my Adamts13 had fallen from above 100 to 23.  I was called in for an emergency retest, and an appointment for Retuximab on standby.  Thankfully it had risen to 84, without intervention.  I'm proud of myself for staying as calm as I did,  even though I did shed a tear when I put the phone down.  A week later, my Adamts13 is back to above 100. I had read that many people have an occasional bounce, and as I had had the virus, that seems exactly what this was.  I'm grateful to the team for their prompt action, and their reassurance.   I did feel safe in the hands.  Goodness,  I'm getting an old hand at this.  Several years ago I would have been panicking.  Today we've...
Post a Comment
Read more