This may seem like an odd post, but I may have given the wrong impression and made recovery from TTP seem easy. It isn't, and you have to fight. 10 years ago when I was first diagnosed with TTP I was wracked with anxiety, about it happening again. I believe this fear is exaggerated by the steroids. I don't want to underplay this for others that are recently diagnosed and treated, or those that struggle. It is debilitating. Over time though I have found ways to deal with it. Counselling was one of my first points of call. As I gradually came off the steroids I was advised that I should be trying new things, or retrying things again. Like driving. I've written a post about that already. I have to thank the Haematologists and a Beacon Centre Counsellor for all the help they gave me. The second step, for me, was rebuilding my strength. I achieved this by exercise, mostly just walking. ...
The blog of a TTP Rare Disease Survivor. Trying to maintain good health and gratitude for all the love and care I’ve received from family, friends and a wonderful team of NHS Professionals. Years ago it was suggested that I keep a journal of Mindfulness. This is my journal. I hope it helps someone else, as much as me. ❤️