Skip to main content

A TTP Celebration Sandwich Weekend

Had such a great weekend!  We travelled up country to attend the TTP 25th Anniversary Conference and decided to make a proper weekend of it.
TTP was first recognised as a condition in 1924 and back then the outcomes weren't good.  Now, thankfully, there is treatment and research is finding new and better methods.

The TTPNetwork, giving support to Patients and their families,  began 25 years ago.  A whole lot has been achieved in that time.


Friday 19th May

We decided to stop off at Baddesley Clinton, so much nicer than a motorway service station. 

Wisteria in the courtyard. 

Space to stretch your legs and enjoy the view.

I just love these old wooden studded doors.

Kitchen paraphernalia.  Somehow I always feel at home in an old kitchen. 

Plenty of rhubarb in this kitchen garden. 

And the shed is really something 😊.

There are stew ponds and duck ponds.

A woodland walk.

Lily pads and Cow Parsley.

Saturday 20th May  

The day of the 25th Anniversary Conference.   The chance to meet other Patients, their families, and listen to their stories.   To meet Consultant Haematologists, and to learn more about TTP.  To enjoy a relaxed atmosphere where everyone mixes on an equal basis.  I'm so pleased I didn't miss this great opportunity.   Absolutely recommended!

In the evening we met up with some of the participants for a meal and a celebration drink 🥂




Sunday 21st May

Another day, another place to visit 😊.

On the way back we stopped off at Dyrham Park.  A beautiful day, just right for a stroll down to the house and cafe.  More ponds, more wonderful gardens.  I feel we cracked the boring journeys on non stop motorways.  Find a place you can enjoy for your break, plan it in if you can.   

Of course, a walk down means walking back up, Dyrham Park is hilly and the car park is approx 20mins from the facilities.   But worth it.

Bunting around the orchard. I'll copy this idea when family come to stay. On a smaller scale, of course 😉

No fish, but there were tadpoles.

The Old kitchen. So much more impressive than the Drawing Rooms and Bedrooms.

Someone would have turned this rack in front of the fire.  Not dissimilar to torture. 

The courtyard,  with more wisteria. 

A beautiful old horse chestnut tree.

The view as you wander down the hill

Thank you to everyone involved with this weekend 😊. It’s one that will stay with me for a long time.






Comments

Popular posts from this blog

10th Dec 2024, Trees

There's something about trees that is ultra calming.  Just looking them, but walking through them is just amazing.   They are timeless.   When family come to stay we always walk in the woods.  It's something everyone should do, I recommend it for exercise and wellbeing. At this time of year, many people are thinking about trees.  Our Christmas Tree has been decorated since 2nd Dec, and it certainly helps brighten our home during this darkest month when the daylight is at its shortage.  Our tree is artificial, we've had it for years.  It's carefully packed away each January and reassembled at the beginning of December.  It's decorated with ornaments collected over the years, gifts from friends and family, near and afar, and souvenirs from our holidays  We love our tree 😊. Trees come in all sizes 😊 Another favourite tree in our garden is our Acer.  It's beautiful all through the year, especially autumn, ...

31st October 2024, I'm A Halloween Grinch 🎃

I don't like Halloween.   It's origins or the 21st Century version. Right from it's beginnings it has been about death and spirits of the dead.  I always say I'm not superstitious,  but somethings shouldn't be messed with.  Halloween, or All Hallows Eve, has been turned from a Celtic tradition to ward off evil and spirits, to a commercial nightmare.  I know that many will say that nowadays it's just a bit of fun, but like my fear of spiders, its maybe instinct.  Maybe its the near death experiences that TTP survivors have, a little too close to home. Winter in this part of the world brings darkness and cold, something that the Celtic people took seriously.   If any misfortune befell them in the winter, they likely didn't survive.  For a while the Christian form of All Hallows Eve became a time when the poorest folk would beg at more wealthy folk’s doors for food, in return for offering prayers.  Now children are encouraged to trick ...

21st October 2024, Newcastle, Gateshead, Angel of the North

This weekend away was not my choice but my husband's.   To be fair I've had my weekends away and it was his turn.   Of course,  it involved football.   BHA v Newcastle.  It's on his list of dreams.  What would my grandfather,  a supporter,  think of us flying to Newcastle to watch a match? We flew with Easyjet, cabin bags under our seats, and limited amount of cloths.  I've never travelled for a weekend before knowing that I would need to wash undies.  My meds (not TTP related) took up more space than my toiletries!   We arrived exhausted, but driving would have been so much worse. We ignored our own travel tip and landed after sunset.  It's disorienting to land in the dark when you have no idea where you are.  Flight delayed at both ends, we took the Metro from the airport to the city centre, it was delayed en route, and then we left the station by the wrong exit.  It resulted in us walking more t...