Our March 2023 Garden 🙂

The first thing to say is my blood results are all excellent. Pristine, I'm told. Phew! I've been feeling really off colour, a friend has covid and I've had something close to Sinusitis, even though a nurse told me I wasn't in enough pain to have it. Thankfully, with some codeine I managed to get through it. It's a worry as TTP is an autoimmune condition.

Anyway, I've been away to spend some time with family and am home again. Always a delight, and hard to leave, but they have their own lives. I’m grateful they’re all doing so well 😊

Our garden has begun to awaken and I'm relieved to see some real signs of spring at last. The frog spawn has unfortunately vanished. Possibly heron breakfast, we've had visits before. Such a shame, all that effort on the frogs' part and now no tadpoles. Nature, of course, but harsh.

Here are a few signs of spring in our garden 🙂

Primroses in between old sleeper steps

Cyclamen amongst a Shamrock

Grape Hyacinths in an old sink

Red Dogwood breaking into leaf

The Camelia looks a bit battered by the recent weather.

There are tiny blossom buds on the pear tree that was moved in the autumn. I wasn't sure it would take and am so pleased that it has. Hopefully we will have home grown dessert pears later this year.

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10th Dec 2024, Trees

There's something about trees that is ultra calming. Just looking them, but walking through them is just amazing. They are timeless. When family come to stay we always walk in the woods. It's something everyone should do, I recommend it for exercise and wellbeing. At this time of year, many people are thinking about trees. Our Christmas Tree has been decorated since 2nd Dec, and it certainly helps brighten our home during this darkest month when the daylight is at its shortage. Our tree is artificial, we've had it for years. It's carefully packed away each January and reassembled at the beginning of December. It's decorated with ornaments collected over the years, gifts from friends and family, near and afar, and souvenirs from our holidays We love our tree 😊. Trees come in all sizes 😊 Another favourite tree in our garden is our Acer. It's beautiful all through the year, especially autumn, ...

29th December 2024, New Year Approaches

I've been thinking about my blog. I began to journal as a way forward through the fog of PTDS and I think I've found my way. I can find the daily mindfulness more easily than when I started. I'm not really sure if anyone reads my words. They probably don't mean anything to anyone else and I don't know if they are read or not. Statistics tells me I've had page views from around the world, but it could just be automated bots scanning the words. More recently, I've come to suspect it is. That's OK, the blog is mine and it's done it job. I live my life calmly. I try to be a good person. I'm ordinary. I'm also proud of coming this far. From a quivering wreck of post treatment and TTP diagnosis, I'm happy. I've lost many people along the way, family, friends, colleagues, neighbours, many younger than me, for reasons other than TTP. I do wonder sometimes why I survived and they didn't....

31st Jan 2025, An Adamts13, Rare Disease, Blip

As a way to make me eat the words in my last post, my Adamts13 took a bounce. Either over Christmas, or New Year, I picked up a nasty virus that left me with feeling shattered and with a cough. I was due a routine blood test and it showed my Adamts13 had fallen from above 100 to 23. I was called in for an emergency retest, and an appointment for Retuximab on standby. Thankfully it had risen to 84, without intervention. I'm proud of myself for staying as calm as I did, even though I did shed a tear when I put the phone down. A week later, my Adamts13 is back to above 100. I had read that many people have an occasional bounce, and as I had had the virus, that seems exactly what this was. I'm grateful to the team for their prompt action, and their reassurance. I did feel safe in the hands. Goodness, I'm getting an old hand at this. Several years ago I would have been panicking. Today we've...

Porridge for Breakfast, The Ordinary Life of a TTP Survivor

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