Skip to main content

Dreams

 Last night I dreamt of Christmas.   Or rather Christmas preparations that weren't going to plan. Christmas lights that wouldn't work, that couldn't be found.  What does that mean?  For me, I think, it's the realisation that I have no control, and I've always been a control freak.  It irritates my family, and now my lack of control irritates me.

I have a chronic blood disorder.   It shouldn't be debilitating,  but it creeps or rather slips from under the feet, sending me sliding over a cliff if I walk to close to the edge.  So once you have a diagnosis,  regular blood tests are given to track how stable it is, and it's projectory when it starts to wander.

Thanks goodness for our NHS, I don't know where I'd be without it.  It's scary for people who are so dependent on it, reading about how it is failing.  For many it's a life saver, for many it's a way of life, and I'll never forget how grateful I am to be alive because of it.

I aim, in this blog, to change direction and try to explain how I live my life with TTP, Thrombotic Thrombocytopenia Purpura.


Snowdrops

Comments

Post a Comment

Hope you enjoyed my blog. I love to know what you think. All comments are moderated. Thanks for stopping by. 😊

Popular posts from this blog

31st October 2024, I'm A Halloween Grinch 🎃

I don't like Halloween.   It's origins or the 21st Century version. Right from it's beginnings it has been about death and spirits of the dead.  I always say I'm not superstitious,  but somethings shouldn't be messed with.  Halloween, or All Hallows Eve, has been turned from a Celtic tradition to ward off evil and spirits, to a commercial nightmare.  I know that many will say that nowadays it's just a bit of fun, but like my fear of spiders, its maybe instinct.  Maybe its the near death experiences that TTP survivors have, a little too close to home. Winter in this part of the world brings darkness and cold, something that the Celtic people took seriously.   If any misfortune befell them in the winter, they likely didn't survive.  For a while the Christian form of All Hallows Eve became a time when the poorest folk would beg at more wealthy folk’s doors for food, in return for offering prayers.  Now children are encouraged to trick ...
Post a Comment
Read more

23rd September 2024 Apple Pies, Not Quite How Grandma Made Them 😉

I get a lot of recipe videos on my social media feeds.  Many claim to be just how someone's Grandmother showed them.  I often doubt it's true.  I'm older, of course, so possibly I'm thinking of days from long ago.  My Grandma, Nanny we called her, was born more than 100 years ago.  She had a large family and undoubtedly did make pies, but I don't think they had desserts.  She would have made pastry, she didn't have a fridge, and I have seen her cooker in a museum 🥰.   Nanny had access to fresh veg because Grandad had an allotment and she kept her own hens and rabbits.  She didn't leave a recipe book, but she left a healthy brood of children. The old apple tree in our garden has withered this year.  Although it had buds, it didn't produce any blossom so no apples.  We couldn't bring ourselves to remove it, and we'll give it another chance next spring.   I do know it will be something of a miracle if it fruits again. My nei...
Post a Comment
Read more

21st October 2024, Newcastle, Gateshead, Angel of the North

This weekend away was not my choice but my husband's.   To be fair I've had my weekends away and it was his turn.   Of course,  it involved football.   BHA v Newcastle.  It's on his list of dreams.  What would my grandfather,  a supporter,  think of us flying to Newcastle to watch a match? We flew with Easyjet, cabin bags under our seats, and limited amount of cloths.  I've never travelled for a weekend before knowing that I would need to wash undies.  My meds (not TTP related) took up more space than my toiletries!   We arrived exhausted, but driving would have been so much worse. We ignored our own travel tip and landed after sunset.  It's disorienting to land in the dark when you have no idea where you are.  Flight delayed at both ends, we took the Metro from the airport to the city centre, it was delayed en route, and then we left the station by the wrong exit.  It resulted in us walking more t...
Post a Comment
Read more